Wednesday, December 25, 2013

Merry Christmas.

Sorry I haven't posted in a while and checking on my lupus buddies but I'm back on to say Merry Christmas and I hope that everyone's having a great Christmas. Even when in pain it always good to know that your family will always be there for you. Christmas is not about the gifts you receive it's about the birth of Christ so you  should just be blessed to be here. I love all my lupus buddies and I hope you had a jolly day!

Saturday, December 21, 2013

Christmas shopping

Just finished Christmas shopping with my family I hope you guys had a wonderful day today have a nice weekend. Love al. My Lupus buddies!

Wednesday, December 18, 2013

Happy birthday

Happy birthday to my sister she's turning 21 today and ready to party. Later on we're celebrating at Benihana. YUM!!!!! Happy birthday to anyone who's birthday is today and have a great you lupus buddies!

Tuesday, December 17, 2013


I went to my doctors appointment yesterday and think it went well. Today at school were going to the movies to celebrate people with great behavior and I m so excited have a great day all my lupus buddies.

Saturday, December 14, 2013


Omg yesssssss! I have been waiting for this day all year lol…not. But had fun. I got dressed up,in 6 layers and went outside and played on my snowboard. It was a blast. I never felt so comfortable in the  snow. Couldn't believe only two fingers were white. Thanks to Dr.Adams and Dr.Valentino for helping me this past year.

Friday, December 13, 2013

Friday the 13th

Today is Friday so glad I made it through the week. I also wanted to say is that I love all my lupus buddies and have a wonderful safe. Lol

Thursday, December 12, 2013

God bless

Hey lupus buddies I'm so happy. I took my medicine and ready to go. I'm dress warm in my coat,glove, hat, scarf, and a lot of layers. Hope you guys have a graceful day.

Wednesday, December 11, 2013

Feeling blessed

On my way to school. Didn't have any home work last nice. Finally! So I got to play around with my nephew Camari. Today I hope to make dinner for my family. Can't wait to see how that will turn out. Have a great day Lupus buddies

Tuesday, December 10, 2013


Hello lupus buddies have a wonderful day I want to just give a hand for everyone that has not giving up. Those who take there meds and more.
                                     Remember you have lupus, lupus doesn't have you!

Monday, December 9, 2013


Time for school. It's a lot of snow out and really cold *burr* this is not a good time for my raynauds. Time for white finger tips. Wish me luck, and have a fabulous day my lupus buddies.

Sunday, December 8, 2013

My nails

Hi lupus buddies I did my nails today and I think they look kind of nice. I'm sorry I didn't post anything yesterday but I had a headache and I was hurting. Have a nice Sunday and god bless.

Friday, December 6, 2013

Thank god it's Friday

Hey all my lupus buddies. Yay! It's Friday. I'm going to have a great time relaxing and sleeping all weekend. Wish I could spend my weekend with my mommy but she going on a carnival cruise. I feel sorry for her  on a warm boat with games, food, and fun excursions. Wish I could feel her pain …lol.
I guess it's time to spend time with my sister for a week. I guess I'll just play with different designs for my nails this weekend. I hope you guys have a marvelous weekend.

Thursday, December 5, 2013


Hi Lupus buddies I had a great day at school. This  trimester at school I'm taking theater. It is really fun. Today I had to act like I was tying my shoe. My neck hurts a little but other than that in just blessed to be alive.

Wednesday, December 4, 2013


Time for school. 
Took my medicine,
Ate some breakfeast ,
And got my paper signed 
Check ready for school have a wonderful day my lupus buddies.

Tuesday, December 3, 2013

Pink eye

So I woke up this morning with the PINK eye. . Out of all things the pink eye got to stay home from school.i can't afford to miss a day of  school :(

Monday, December 2, 2013

First of the trimester

Wasn't feeling to so hot in the morning but my mom always knows what to day. I got up through all the pain and went to school anyway. It was the first of the trimester and I met new people. I feel better now that I walked it off.

Sunday, December 1, 2013


All my lupus buddies have a nice rest and sleep peacefully let your body rest and GOODNIGHT

Wake up

Today I woke up to my surprise I am feeling great. No pain anywhere for now. I've already took my daily meds. So only god knows where the day will take me. I wish everyone out there have a beautiful and marvelous day. Stay strong. Just always remember…
                                    I HAVE LUPUS, LUPUS DOESN'T HAVE ME!  

Saturday, November 30, 2013

Lupus commercial

This is how I feel everyday. I wish there were more commercial like this one. One day all is going to change.
*Doesn't show up on mobile devices*

My story

Hi my name is ChyAnn. In September 2011, I was diagnosed with a rare disease called Lupus (SLE) with nephritis My life changed drastically when we learned that I had lupus. My mom was really surprised because Lupus is supposedly not inheritable; but my mom had Lupus and she learned that her great grandmother had Lupus also. When I learned that I had been diagnosed with lupus I was 10 years old, just starting 5th grade. It was the hardest months of my life. I felt alone not being able to do all the things the other kids could do, getting tired so fast and feeling weak. Having no idea how I would feel in the morning, it wasn't fair or right. I thought everyday "Why me"? What did I do to deserve this. It was horrible. 

But the month I will never forget is February 2012 when I started having to take a medication called prednisone(steroids). When I first started taking prednisone they had to check me monthly and I was sure I missed over 40 days of school that year. I was once known as the skinny girl, all skin and bones. As the months progressed so did the doses of prednisone (steroids), they started at 10mg not ending till it reached 60mg. All of my family would say you starting to get chubby, I started to hate how big I was. To make things worse the steroids were not doing the job. So my doctor made me change my prednisone pills to steroid injections with needles. That's when it got all bad. It was right after school ended I was miserable; the injections got me so fat! I went from being a skinny 80 pound girl to  133 pounds. I hated my self, but that didn't keep a smile off my face. I would stuff my face with food, I would just eat because I knew I could. Even though I felt horrible I didn't want to let anyone know I was feeling When I returned to school no one recognized me, I could hear people talking about what could of happened. I didn't tell anyone because I was to embarrassed and shy to tell anyone what happened to me. But as the year went on people got used to me and noticed I was the same old ChyAnn. 

This year I have been slowly losing weight because the lowered my prednisone, my prednisone got down to 7.5 mg of prednisone. But early November 2013 they had to bring my steroids back up to 60mg. When I first found out I started to cry. But as always my mom calmed me down stating things could have been worse like my stay in the intensive care unit earlier in the year. I am glad to say I'm very stable and feeling good these days. I don't know where the future will take me, but I always have to remember I HAVE LUPUS,LUPUS DOES NOT HAVE ME!