A place for teens and kids that have lupus to feel that they have a buddy to always talk to.
Wednesday, December 25, 2013
Merry Christmas.
Sorry I haven't posted in a while and checking on my lupus buddies but I'm back on to say Merry Christmas and I hope that everyone's having a great Christmas. Even when in pain it always good to know that your family will always be there for you. Christmas is not about the gifts you receive it's about the birth of Christ so you should just be blessed to be here. I love all my lupus buddies and I hope you had a jolly day!
Saturday, December 21, 2013
Christmas shopping
Just finished Christmas shopping with my family I hope you guys had a wonderful day today have a nice weekend. Love al. My Lupus buddies!
Wednesday, December 18, 2013
Happy birthday
Happy birthday to my sister she's turning 21 today and ready to party. Later on we're celebrating at Benihana. YUM!!!!! Happy birthday to anyone who's birthday is today and have a great day.love you lupus buddies!
Tuesday, December 17, 2013
Movies
I went to my doctors appointment yesterday and think it went well. Today at school were going to the movies to celebrate people with great behavior and I m so excited have a great day all my lupus buddies.
Saturday, December 14, 2013
Snow
Omg yesssssss! I have been waiting for this day all year lol…not. But had fun. I got dressed up,in 6 layers and went outside and played on my snowboard. It was a blast. I never felt so comfortable in the snow. Couldn't believe only two fingers were white. Thanks to Dr.Adams and Dr.Valentino for helping me this past year.
Friday, December 13, 2013
Friday the 13th
Today is Friday so glad I made it through the week. I also wanted to say is that I love all my lupus buddies and have a wonderful Friday.be safe. Lol
Thursday, December 12, 2013
God bless
Hey lupus buddies I'm so happy. I took my medicine and ready to go. I'm dress warm in my coat,glove, hat, scarf, and a lot of layers. Hope you guys have a graceful day.
Wednesday, December 11, 2013
Feeling blessed
On my way to school. Didn't have any home work last nice. Finally! So I got to play around with my nephew Camari. Today I hope to make dinner for my family. Can't wait to see how that will turn out. Have a great day Lupus buddies
Tuesday, December 10, 2013
Applause
Hello lupus buddies have a wonderful day I want to just give a hand for everyone that has not giving up. Those who take there meds and more.
Remember you have lupus, lupus doesn't have you!
Remember you have lupus, lupus doesn't have you!
Monday, December 9, 2013
Snow
Time for school. It's a lot of snow out and really cold *burr* this is not a good time for my raynauds. Time for white finger tips. Wish me luck, and have a fabulous day my lupus buddies.
Sunday, December 8, 2013
My nails
Hi lupus buddies I did my nails today and I think they look kind of nice. I'm sorry I didn't post anything yesterday but I had a headache and I was hurting. Have a nice Sunday and god bless.
Friday, December 6, 2013
Thank god it's Friday
Hey all my lupus buddies. Yay! It's Friday. I'm going to have a great time relaxing and sleeping all weekend. Wish I could spend my weekend with my mommy but she going on a carnival cruise. I feel sorry for her on a warm boat with games, food, and fun excursions. Wish I could feel her pain …lol.
Thursday, December 5, 2013
Amen
Hi Lupus buddies I had a great day at school. This trimester at school I'm taking theater. It is really fun. Today I had to act like I was tying my shoe. My neck hurts a little but other than that in just blessed to be alive.
Wednesday, December 4, 2013
School
Time for school.
Took my medicine,
Ate some breakfeast ,
And got my paper signed
Check ready for school have a wonderful day my lupus buddies.
Took my medicine,
Ate some breakfeast ,
And got my paper signed
Check ready for school have a wonderful day my lupus buddies.
Tuesday, December 3, 2013
Pink eye
So I woke up this morning with the PINK eye. . Out of all things the pink eye got to stay home from school.i can't afford to miss a day of school :(
Monday, December 2, 2013
First of the trimester
Wasn't feeling to so hot in the morning but my mom always knows what to day. I got up through all the pain and went to school anyway. It was the first of the trimester and I met new people. I feel better now that I walked it off.
Sunday, December 1, 2013
Wake up
Today I woke up to my surprise I am feeling great. No pain anywhere for now. I've already took my daily meds. So only god knows where the day will take me. I wish everyone out there have a beautiful and marvelous day. Stay strong. Just always remember…
I HAVE LUPUS, LUPUS DOESN'T HAVE ME!
I HAVE LUPUS, LUPUS DOESN'T HAVE ME!
Saturday, November 30, 2013
Lupus commercial
*Doesn't show up on mobile devices*
My story
Hi my name is ChyAnn. In September 2011, I was diagnosed with a rare disease called Lupus (SLE) with nephritis My life changed drastically when we learned that I had lupus. My mom was really surprised because Lupus is supposedly not inheritable; but my mom had Lupus and she learned that her great grandmother had Lupus also. When I learned that I had been diagnosed with lupus I was 10 years old, just starting 5th grade. It was the hardest months of my life. I felt alone not being able to do all the things the other kids could do, getting tired so fast and feeling weak. Having no idea how I would feel in the morning, it wasn't fair or right. I thought everyday "Why me"? What did I do to deserve this. It was horrible.
But the month I will never forget is February 2012 when I started having to take a medication called prednisone(steroids). When I first started taking prednisone they had to check me monthly and I was sure I missed over 40 days of school that year. I was once known as the skinny girl, all skin and bones. As the months progressed so did the doses of prednisone (steroids), they started at 10mg not ending till it reached 60mg. All of my family would say you starting to get chubby, I started to hate how big I was. To make things worse the steroids were not doing the job. So my doctor made me change my prednisone pills to steroid injections with needles. That's when it got all bad. It was right after school ended I was miserable; the injections got me so fat! I went from being a skinny 80 pound girl to 133 pounds. I hated my self, but that didn't keep a smile off my face. I would stuff my face with food, I would just eat because I knew I could. Even though I felt horrible I didn't want to let anyone know I was feeling When I returned to school no one recognized me, I could hear people talking about what could of happened. I didn't tell anyone because I was to embarrassed and shy to tell anyone what happened to me. But as the year went on people got used to me and noticed I was the same old ChyAnn.
This year I have been slowly losing weight because the lowered my prednisone, my prednisone got down to 7.5 mg of prednisone. But early November 2013 they had to bring my steroids back up to 60mg. When I first found out I started to cry. But as always my mom calmed me down stating things could have been worse like my stay in the intensive care unit earlier in the year. I am glad to say I'm very stable and feeling good these days. I don't know where the future will take me, but I always have to remember I HAVE LUPUS,LUPUS DOES NOT HAVE ME!
But the month I will never forget is February 2012 when I started having to take a medication called prednisone(steroids). When I first started taking prednisone they had to check me monthly and I was sure I missed over 40 days of school that year. I was once known as the skinny girl, all skin and bones. As the months progressed so did the doses of prednisone (steroids), they started at 10mg not ending till it reached 60mg. All of my family would say you starting to get chubby, I started to hate how big I was. To make things worse the steroids were not doing the job. So my doctor made me change my prednisone pills to steroid injections with needles. That's when it got all bad. It was right after school ended I was miserable; the injections got me so fat! I went from being a skinny 80 pound girl to 133 pounds. I hated my self, but that didn't keep a smile off my face. I would stuff my face with food, I would just eat because I knew I could. Even though I felt horrible I didn't want to let anyone know I was feeling When I returned to school no one recognized me, I could hear people talking about what could of happened. I didn't tell anyone because I was to embarrassed and shy to tell anyone what happened to me. But as the year went on people got used to me and noticed I was the same old ChyAnn.
This year I have been slowly losing weight because the lowered my prednisone, my prednisone got down to 7.5 mg of prednisone. But early November 2013 they had to bring my steroids back up to 60mg. When I first found out I started to cry. But as always my mom calmed me down stating things could have been worse like my stay in the intensive care unit earlier in the year. I am glad to say I'm very stable and feeling good these days. I don't know where the future will take me, but I always have to remember I HAVE LUPUS,LUPUS DOES NOT HAVE ME!
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